Wednesday, April 9, 2008

Fee-Lie-Ohh-Bum

Fee-Lie-Ohh-Bum
apparantly mark anthony has heard "Jack and the Beanstalk" at preschool, as he has been chanting "fee-lie-ohh-bum" the past several days.
its so cute!
i will repeat fee-fie-fo-fum.
but fee-lie-ohh-bum sounds so much cuter!
tonight at ball practice, while tommy is grinning and flirting and showing off his new tooth and the place where the second one is about to come in, mark anthony is either playing ball with an adorable 4 yr old girl whose sister is on lacee's team, or he is trying to climb the fence to get in the "dame" with lacee.
"lacee in da ball dame. lacee play dame with me. lacee gonna det a 'pankin."
(he thought lacee needed a spankin since she wasnt listening to his commands for her to come out of the field and play with him)
tommy has just about mastered sitting up alone, he can stay up for several minutes before he gets so excited and proud of himself that the kicking makes him topple over.
mark anthony is wearing underwear all day except when he is asleep.
he is still having several accidents, but i am in the mood to just keep him in the undies all day and let him learn. (lets hope it works). he is such a smart child, he knows so much. i still dont understand why the potty has been such a hard time for us.

24 - 48 - 72

i could have sworn the pediatrician said that the culture of lacee's ua would be back the very next day, meaning tuesday, since we were at the doc monday morning.
she said she would call.
patience is not my strong point.
tuesday afternoon at like 2pm, i called to see if they had the results in.
the nurse that answered the line said that they took 72 hours to complete.
seventy-two!
i said, "oh me, i must have miss understood, i thought doc said she would know today"
the nurse said that they (they i guess means the lab at the hospital) send a report at 24, 48, and 72 hours, but that it isnt complete until 72 hours.
gosh, waiting isnt what worried mommas like to do.
but the good thing, lacee is feeling noticably better. we are getting some movement each day with the miralax. not an abundance of movement, but some. and some is better than none.
and she says she feels better.
she was even able to go to school today, and make it through her whole 2 hr softball practice.
i am very thankful for that!

Monday, April 7, 2008

can we play outside today?

took lacee and tommy to the doctor this morning.
our reg pediatrician is back in town.
tommy has an ear infection, so he is on antibiotics for that. he is fussy and not sleeping well, so i am also giving him ibuprofin and teething tablets.
lacee still had not had a movement since the small one after the 3rd enima. three doses of miralax and nothing. doc felt of her belly and said she didnt feel alot in there. lacee is really sore, still sleeping alot and very tender. the pain is around her belly button and the left side is more tender than the right. doc thought we would be ok to wait until next monday for her appt with the ped gastro at vandy. lacee's bloodpressure was high, but i failed to ask what it was. this is the first time they have ever said it was high. they ran a urinalisis on her, and it came back showing traces of nitrates in there. i asked doc why she was sleepy all the time, and thats when she referred to the nitrates. she said that they have always been negative, and this time there was some in there, so they are gonna culture it and see if it grows anything. i asked her what they were looking for and she said bacteria. i am thinking, "bacteria for what?" but i didnt ask. i figure she knows me well enough to know that anything she mentions i am gonna research. (like i am not gonna google "nitrates in pediatric urine" after blogging?) she said the results will be ready tomorrow.
when we left the doc office, i called the office for our ped gastro at vandy and left a message for a nurse. i wanted them to know about the results, or lack thereof, of the medicines on lacee and see if they feel it is ok to wait until next monday.
so the weather out here is beautiful today. we havent had very many of those in a long time. i really want to take my kids to the park this afternoon. our backyard is all red clay mud, certainly not suitable for a toddler unless it is hot enough to hose him down with a water hose before coming inside. but with tommy's ear infection, i wonder if i should. i dont believe in keeping kids in a bubble and not letting them play for fear of getting sick or hurt. i mean, you cant keep them from climbing a tree or playing ball for fear of falling or getting hit with a ball. but at the same time i dont want to make him worse when it is something i can prevent. i have been told that my having to get the boys out alot in the weather to take lacee to and from school, and go here and there, is what causes them to be sick so often. i dont know. my friend wendi says being a mommy is all guilt and worry, guilt and worry. i agree with that. guilty, worry, happiness and love. i guess i can pull up and let lacee and mark anthony run and play while tommy and i sit in the van. its not like tommy is old enough to realize what he is missing yet. or i could find a hat and cover his little head well. i dont know. i am just thinking "outloud".

Saturday, April 5, 2008

a few answers, maybe

when i last posted, lacee and i were waiting in the van.
my laptop battery that is supposed to last 6 hours made a whole 1.5 hrs.
2 hours after leaving my second message for a nurse at the ped gi office, we still had not received a phone call. lacee and i enjoyed a wonderful lunch at a little french coffee shop on 21st.
then we headed to the ped gi's office. by this time, my cell battery was also dead, and i had forwarded all my calls to lacee's cell.
"do you have an appt?" asked the receptionist.
"no ma'am" i replied.
"would you like to schedule one?"
"no, i would like to see the doc now."
i politely explained our situation to her, and she went and got a nurse. the nurse came out to the waiting room and i told her the details of our last 3 weeks with lacee's tummy. she is very kind and concerned with the situation. she went back to her station, and came back to us after a little while. there was only one doc working that afternoon, and he was in procedure. there was a physicians assistant seeing patients, but they cant see patients they have never seen before with out a doc there.
i asked her if she thought i should take lacee back to the e.r. i mean, the discharge instructions said in black and white to bring her back if she is having abdominal pain, or if she is not completely 100% better. well hello?! and since in the medical world, being politically correct and not going against the system carry more weight than giving honest advice to a patient, the nurse could not come right out and say, "yes, take her back", she had to hum-haw around, give a little grin here and a nod there, to indicate what she thought i should do.
so back to the e.r. we go. i tell them she is no better, we cant get into the doc, and we are back to get some help and some answers.
lacee's cell battery died too, so all calls were then forwarded to mark, causing lots of confusion.
they were very kind, as has always been our experience there. i do think they were frustrated at me bringing her back 6 hours after being discharged. but, i am to the point i dont really care. i have to stand up for my kids. all parents do. no one else will.
it took a lot of waiting and waiting and waiting (i honestly began to think at one point when no one came in our room for over an hour and a half that they were just stalling me, hoping that i wouldnt wait and just walk out). but finally, they got a ped gastro in there to see us.
he said she was severely constipated. (all along at sav and by the reg peds we had been told slightly-this is why you need a specialist in whatever situation you are dealing with-they know so much more). if we cannot get this fixed at home she will be admitted. we have an appt scheduled on apr 14 with our ped gastro we have seen before to schedule more tests, including a scope. he said he was not sure if this constipation is what has caused the start of this ordeal, it will be 4 weeks monday, or just the newest problem. clearing it up though is of course nessecary but will also make it easier to see what else may be going on in there.
we left the e.r. about 9pm.
made it home at about 1:30 am, after stopping for supper (poor lacee had not eaten from 11am until 9:45pm), and picking the boys up from chrissys.
the first round of meds worked well for her. the second round has not had an effect.
she says her pain is a little better though.

Thursday, April 3, 2008

waiting

you gotta love big cities.
lacee and i are sitting in the van, on the side of the road, in the rain.
i am 2 blocks away from vanderbilt childrens hospital.
i am surrounded by bookstores and coffee shops, so surely i am hooked up to one of their wireless internet systems.
cool, huh?
anyways, we are in nashville, because after 3 1/2 weeks of pain and investigation that produces no results, this momma has had ENOUGH! so i loaded up all 3 of my kids last night at 10pm.
i took the boys to george ann's for the night, and lacee and i headed out.
mark is working night shift this week.
after posting about her pain earlier, then holding lacee as she cries about the pain, i called her pediatrician, who is out of town, in florida for 2 weeks on a med conference. thank goodness for cell phones. she is concerned about lacee as well, and is like me, yes the constipation is an issue that needs resolved, but that is not the main issue. just the newest and easiest to diagnose. this child has been in pain and nothing we have tried works for her.
we arrive at the ER at vandy kids at 1:30am.
we are discharged at 7:04am.
we know no more than we did when we got there. except that her UTI is almost gone.
they did call and talk to the ped gastro on call, who wants to schedule an upper GI and endoscope.
so we left the hospital, had a lovely bfast at the pancake pantry (a long time fave of lacee's) and we are now sitting on the side of the road in the van.
why?
because i called the ped gastro after bfast and am now waiting on a call from them to get her in TODAY for this procedure. this has gone on long enough and we have no answers.
she has, btw, had 2 really good "movements" this morning, and still says she feels no better at all than she did before.
THREE AND A HALF WEEKS!
this momma has had enough.
when your child looks at you and says, "mom, i dont wanna leave the hospital, i am still hurting and we dont know why".... that is a clue that something needs to be done.
a prayer for my beautiful child would be most greatly appreciated.

Wednesday, April 2, 2008

half birthday!!

i cannot believe it!
tommy is 6 months old today!
WOW!
it seems like just yesterday he was being born!
he is growing so fast!!
he has a tiny tooth that just broke the skin, he is rolling everywhere, almost crawling, and can almost sit alone!
the Lord has surely blessed me with a great husband and great kids!

we live at the hospital

i tell ya, between getting xrays on the boys to check for pnuemonia 2 weeks ago, and having cat scans and xrays on lacee the past 3 weeks, i believe we should be allowed free room and board and meals and snacks at our local hospital for at least a week!
3 weeks ago, lacee began complaining of serious tummy pain. she missed an entire week of school, between the pediatricians office and the hospital. physical tests and symptoms pointed to appendicitis. bloodwork, urinalisis, and cat scan pointed to nothing. 2 days later she says she is worse than she was before. back to the doc, and back to the hospital for repeat bloodwork and ua. still, they showed nothing. lacee was prescribed an anti spazmatic medicine for her tummy.
now, 3 weeks later, she is hurting worse in her belly than before. our pediatrician is out of town and her office is booked solid till the end of the week, so monday evening i take her to the E.R. bloodwork and ua this time show kidney infection and extreme urinary tract infection. lab said so much blood in her urine it would not even register! so she was given meds for that and sent home. after 2 rounds of meds for uti and pain, and 24 hours later, lacee is still hurting, even worse than before.
back to the e.r. we go. they tell us that the bloodwork the night before also showed that she was really dehydrated. they order an xray (they didnt want to give another catscan due to all the radiation). they give her a bag and a half of fluids through the iv, and redo bloodwork and ua. says the uti is a little better, blood still looks good, and the xray showed she was "backed up". (fos as her daddys said). mark and i got to see the xray---wow!!
i asked if this is what has been causing the pain for the whole 3 weeks. the doc says it is possible, but he was not sure and didnt want to say so.
we are sent home with more meds for the uti/kidneys, and 2 "bullets" for the bm. each bullet produced a small bm. 24 hrs later, she has been drinking apple juice, water, and pedialyte. eating grapes and just finished a dose of miralax. she has not gone any more than the 2 small times.
she says she is still hurting.
throughout this ordeal, she has been alot ALOT more sleepy than usual, and has lost 5 lbs. she didnt have it to loose anyway.
we still dont know what exactly is wrong with lacee. she missed school today, wednesday. as a parent, not knowing what is wrong, how to fix it, and/or what to do about it, is the most helpless and horrid feeling.
i am so thankful for great friends. one of my "sisters" (i am an only child, but i have 2 ladies i grew up with, we say we are sisters), debbie silliman, cared for my boys mon night. my bff since we were 16yrs old, chrissy davis, took my boys and cared for them tue night. while on my way to the er the second time, i sent a text message to a couple people letting them know where we were headed and asked them to research the symptoms. next thing i know, my dear friends jennifer copeland and george ann haynes, along with her daughter kara and friend haley, are out at the er with us. lacee and kara have been bffs since kindergarten, and she and haley are growing closer as we have began going to church again and haleys family moved here a few years ago. then our dear pastor david baker shows up and says a touching prayer with us that lacee will be diagnosed and back to normal very soon! what a blessing friends are!!