we finally got the results from the second bloodwork.
the total IGA that is supposed to be at least 70, was 56 last time, has dropped to 46. so she is getting worse.
another set of letters, that is supposed to be at least 20, hers was 0.2 !
celiac is the diagnosis.
i am still playing phone tag with the doctors office to find out when i can swap her over to the diet.
right now, i am having to feed her regular foods, knowing that they are hurting her, because if we swap her over before doing an endoscopy it will scew the test results.
this is so hard!
we have an answer, but i cant do anything about it.
below are some websites listed on the disease.
i will be organizing and founding a local support group soon too.
oh, and just so ya know, a 6 slice loaf of gluten free bread is around $7 !
www.celiac.com
www.glutenfreeforum.com
http://www.celiacdiseasecenter.columbia.edu/A_Patients/A02-FAQ.htm
www.glutenfreemall.com
www.glutenfreedom.net
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